admiration, envy, and dreams.

I have a ton of admiration for women with families. Whether they are working moms or stay at home moms, they do so much through the day including keeping other humans alive. It's got to be one of the toughest and least acknowledged jobs on the planet.

The majority of my friends are one of these women. In fact, out of all my friends, they are the only ones I hang out with. A fact which presents it's own problems, but I'll get to those later. Of my "mommy friends," I've watched how motherhood has changed them and how it's challenged them. Often, I find myself envying them and the lives they have. They're married with their 2.5 kids and beautiful homes they've lovingly decorated.  It's a life I thought I'd have years ago. Trying to be content with my singleness is increasingly difficult when I'm around my dear friends, but I either listen to them talk about their kids' poop or I quit hanging out with them and that's just not an option for me.

For some of them, being a stay at home mom is what they've always dreamed of doing. There's nothing wrong with that. I admire that they visualized a dream and they are living their dream. Some people work their entire lives and never realize their dreams. I don't know if I'll ever realize my dreams. I'm not really sure what my dreams are anymore.

The past six years have changed my life in ways I never thought possible. I look at myself now and have to wonder how did I get to this place. It's as if I've been stuck in the same place for six years and unaware of it the whole time. Now that I've figured that out, I don't know where to go or how to get there. I'm not even sure I know how to take that first step. Sometimes I think about just packing up and leaving town. Going to a place where I can start over without any expectations; past, present or future. But how? I don't have any money and I don't have any idea what I want to be/do. I'm not giving up, I'm just stuck.

This is hard

*It took me a long time to decide whether or not to post this entry. Parts of it may be hurtful to some people and that's not my intention. The whole reason I started this blog was to have an outlet for the physical and emotional stress MS puts on my life along with a place to just express some of my rambling thoughts.*

**I know that there are people in the world that deal with far more serious injuries and illness than I do and they do it much more class and courage than I.**

I've learned that as much as I desire it to be so, I am not much of a writer/blogger. Mostly, I think it is a problem with lack of self-interest. I don't mean I'm not interested in myself (whatever that means), but that I don't find my life all that interesting. My life, in my eyes, is pretty dull and mundane. 

Take this summer for instance. It seems all I do is lounge around the house in an attempt to stay cool. The one thing I struggle with most as a result from my MS is fatigue. The heat of the summer always makes it worse and this summer has been the worst since that first summer after my diagnosis six years ago. WOW, SIX YEARS!!! God has been so good to me these past six years, but with the heat of the summer I just kind of disappear from society. While everyone else is out participating in the world by working, going on vacations, hiking, swimming, jogging, biking, and whatever else there is to do out there, I am stuck inside trying to stay cool. My comfort zone is at about 73.5 degrees and sometimes even just a half degree change in the temperature can start the phases of discomfort. The heat zaps my energy away in no time flat. This year we basically had two or three weeks of spring and then the summer heat moved in. The past month has been down right ridiculous and as my dear friend Denisa put it, it's "stupid hot outside" with temperatures above 100 degrees most of the month of July.  The heat not only drains my energy, but it also completely reinvents my sleep schedule. I sleep all day and I'm up all night. So with the exception of a few weeks, my summer has pretty much consisted of my laying in bed all day with the lights off and the fans blowing over me and not emerging until the sun goes down. Even then it's still too hot to really do much. Thus my life is not any more interesting than a speck of dust. 

There just doesn't seem to be much to write about other than my daily struggle with the disease. I just can't put my brain in that mode of dwelling on the negative, even though I'm sure it would be therapeutic since there isn't really anyone I can talk to about it. My friends haven't been the best at being supportive through this and I can't really blame them. It's not that they aren't good friends, but they just don't want to hear about all the negative aspects and I think they easily forget that I really do have this horrible disease because I don't have "visible" symptoms. They don't realize that we are pretty similar. They talk about their families and about the latest thing their kids have done, because their families are the biggest, everyday thing in their lives. If I don't talk about how I'm doing with my MS then I most often don't have much to talk about, because that's my everyday. I don't have a kid or husband/boyfriend to help make life interesting. I don't go out to clubs or bars to meet new people. The truth is I've never told anyone how I'm really doing. I've heard my friends comment several times on people who "always have something wrong" or are "paranoid." They don't exactly make me believe they really want to hear how I'm doing. As for the other people in my life, either they are obviously not interested, don't want to hear it, or they already worry too much and I just don't feel like I can add to that. I know and am willing to admit that part of these perceptions and feelings are from the depression that often goes along with MS and at times I am a little bit jealous of the lives my friends have. I never ever thought that my life would be what it is and what it is not. Also, I have not talked to my friends about these feelings because that's a conversation I just don't know how to have. Like I said at the top of this thing, it isn't my intention to hurt anyone's feelings. I just need to have an outlet where I'm not being judged, where people aren't thinking I just want attention or sympathy. The fact is this life is much harder than I ever thought it would be. 

For now I have to be content and at peace. I will overcome this. I have not and will not give up or give in no matter how hard it gets. It's just hard to block it out all day every day, and every now and then I have to exhale and empty the tank that's been holding it all in. I know that I'm not alone on this journey and that God is always with me, which is enough. As for everyone else, I think eventually we'll figure out how to do this dance. 

RLJ

Tornado Complacency

Around my hometown of Sand Springs and in much of the Tulsa area, we often joke about tornados. In Sand Springs there is a story that has been passed down from generation to generation about an old indian(native american) "blessing" that protects Sand Springs from tornados. This story and the fact that it has been decades since Sand Springs and most of Tulsa has taken a direct hit from an actual tornado, have contributed to a "tornado complacency" here. We've had our fair share of strong, straight-line winds, but not full fledged tornados. Even kids are known to stand outside and watch the storms roll in. I even stood outside and watched tonight.

However, I can't help but remember a trip to Kansas back in May 1999. Mom, Sheila and I had been in Wichita for a soccer tournament. We were on our way home late Sunday afternoon when a small, weak tornado dropped from the sky right on top of us. We were in Kansas, out in the middle of nowhere. For the record, Kansas is flat. I mean, flat. We've always been told to vacate the vehicle and get in a low lying ditch during a tornado, but this time there was no ditch. Kansas is flat, no ditches. Plus, it was hailing with baseball to softball size hail stones. We probably would have been killed by the hail had we gotten out of the van. So there we were sitting in the van on the side of Interstate Highway 35 out in the middle of nowhere, completely exposed as this tornado descended upon us. Visibility immediately went to zero and the van began to move. Not just shake, but physically move from one place to another. The wind was literally pushing us around. All my life I'd been taught and trained for what to do in the event of a tornado and there I was at 15 years of age and unable to do what I'd been taught. As the storm passed and we continued down the highway the road went from gray to green. The tornado might not have been powerful enough to eat us and our van, but it did rip up the sod from the nearby farms and completely blanket four lanes of open highway. We spent the rest of the night trying to out-run the tornados. We made it home 10 minutes before the storm was to hit Sand Springs and immediately headed to Tulsa to my aunt and uncle's house for shelter. Just as the storm approached Sand Springs it lifted, and returned to the clouds. That trip was perhaps the scariest time of my life.

As yet another tornado outbreak stormed across the state today, I watched my facebook newsfeed fill up with jokes and comments displaying the dangerous complacency that exists here. It doesn't seem to matter that communities all around us suffer damage year after year. People here still refuse to heed the warnings. My sister complains about all the "depressing" images on the news from the city of Joplin, MO which suffered a direct hit from a massive tornado just two days ago. My hope is that by showing all those images and telling all of the stories that people will realize the reality of these monsterous beasts. Tornados are no joke. Hopefully these images lingering across my television will lead to lives saved and these twisters will suck up that complacency without sucking up our homes.